i have an angiogram next monday that determines my fate (prolly hitting double digit brain surgeries)

Bless up OP. Wishing you all the best!

yo!!! i didn’t update here but they went in to find that the gammaknife radiated the last open part of the AVM and was a success, which means i’m good for atleast a bit but crazy enough this alien s*** can continue to grow new pathways so just always go a have to keep up w it and go accordingly but for the time being i’m chilling!!

have a procedure tm to get some new tech in my chest that connects to the vagus nerve up to the brain in the hopes that can give me the finishing touches for my left hand, heard a lot of promising stuff about it

Curious...Do you live in the US? What's your medical bills looking like? Insurance covering most of this?

yes and i luckily don’t have any medical debt, after the first stroke i got onto social security disability and after being on that for 18 months (i think?) you get medicare and w that as my primary and my mom’s as secondary i don’t even have co pays

Love u @op

one big one looking back on it was for the first 24 years of my life prior to hemorrhaging the AVM would pulse irregularly and wake me up a few times a night i would just stare at the ceiling for a couple seconds but go right back so i never got a full night of sleep but that was my normal til i was in the hospital and my mom always said i never slept as a baby which was the AVM and i would cry like a b******, but hindsight is 20/20

Continuing to send all my love OP and hope you’re doing well!!

didn’t get ANY arm function back until the 1.5 year mark and for the last few i’ve been able to reach for the sky now this vivistim is gonna let me do it w a wide open hand

everytime i raised my blood pressure it stretched the AVM until it got weak enough to pop

was the moment i realized the cognitive stroke wiped my previous social anxiety, which was an insane feeling that i couldn’t quite comprehend in the moment

Thats gotta be a surreal feeling for sure. So many people deal with it, I definitely do, but to have a stroke remove that fear.

Is it kind of like you just dont care anymore because of what you've went through, or is it because you physically just dont feel it

in addition to wiping the anxiety the cognitive stroke also took away my sense of shame which have felt like i have actual superpowers comparatively (def had to learn how to not press the limits w that though lol), best years of my life since NO question. life without ANYTHING holding me back has been glorious

Its not often that people come out of a stroke and hemorrhage and begin living their peak years

You are 1 of 1 brother, proud to see the success you're having.

glad for you op

Stroke of luck

Lord I have seen what you have done for others and I want that for me

what

weird turn of events as i was getting rolled in i got nausea and threw up so they cancelled the procedure i usually get a bunch of meds to prevent that but for some reason they didn’t do the ones for the night prior this time

update: only pushed back to the 7th

retry tm 1130

successful this time! back home to relax and really excited to get after it after the sutures get removed